Opportunity Information: Apply for PA 17 018
The grant opportunity titled "Palliative Care Needs of Individuals with Advanced Rare Diseases and Their Family Caregivers (R01)" (Funding Opportunity Number PA-17-018) is a discretionary National Institutes of Health (NIH) research grant designed to build stronger, more practical evidence for palliative care in the context of advanced rare diseases, including rare cancers. The central aim is to expand what is known about how palliative care can better address the real-world needs of seriously ill people living with rare conditions and, just as importantly, the family members and other unpaid caregivers who often shoulder day-to-day support. The FOA emphasizes improving both physical well-being (such as symptom control, comfort, functional status, and other clinical outcomes) and psychosocial well-being (such as stress, anxiety, depression, coping, communication, social support, and caregiver burden), with an overarching focus on quality of life for patients and caregivers.
This announcement uses the NIH R01 mechanism, which generally supports investigator-initiated, hypothesis-driven research projects that can make a substantial contribution to an evidence base. In practical terms, the FOA is oriented toward studies that can identify palliative care needs in advanced rare diseases, test interventions or care models that address those needs, and generate findings that are rigorous enough to inform clinical practice, future research, and potentially policy or health system implementation. Because rare diseases often involve small, dispersed patient populations, complex trajectories, limited disease-specific treatment options, and major uncertainty for families, the intent is to encourage research that is sensitive to these realities and that produces actionable knowledge for improving care and support.
Eligible applicants are broad and include a wide range of public, private, nonprofit, and governmental organizations. Eligible entities include state, county, city, township, and special district governments; independent school districts; public and state-controlled institutions of higher education; private institutions of higher education; Native American tribal governments (federally recognized); tribal organizations that are not federally recognized tribal governments; public housing authorities and Indian housing authorities; nonprofits with or without 501(c)(3) status (excluding institutions of higher education when specified in those categories); for-profit organizations other than small businesses; and small businesses. The FOA also explicitly notes additional eligible applicant types, reflecting an interest in inclusive participation and broader reach: Alaska Native and Native Hawaiian Serving Institutions, Asian American Native American Pacific Islander Serving Institutions (AANAPISISs), Hispanic-serving Institutions, Historically Black Colleges and Universities (HBCUs), Tribally Controlled Colleges and Universities (TCCUs), faith-based or community-based organizations, eligible agencies of the federal government, regional organizations, U.S. territories or possessions, and non-domestic (non-U.S.) entities (foreign organizations). This wide eligibility is meant to support diverse research settings and populations, including underserved communities and cross-border collaborations when appropriate.
From an administrative standpoint, the opportunity is categorized under Education and Health activities and is associated with CFDA numbers 93.361, 93.393, 93.395, and 93.399. The posting indicates it was created on 2016-10-18 and lists an original closing date of 2018-01-24. Some fields such as award ceiling and expected awards are not specified in the provided excerpt, which typically means applicants would need to refer to the full NIH announcement and related institute/center guidance for budget expectations, project period norms, and any institute-specific constraints.
Overall, the FOA is best understood as an NIH effort to push palliative care research further into the rare disease space, where evidence gaps are common and where both patients and families can experience high symptom burden, complex decision-making, and significant emotional and practical strain. The emphasis on both patient and caregiver outcomes signals that competitive projects would likely need to address the caregiving context, not just the patient experience, and to produce findings that help the field deliver more effective, compassionate, and measurable improvements in quality of life for those facing advanced rare illnesses.Apply for PA 17 018
- The National Institutes of Health in the education, health sector is offering a public funding opportunity titled "Palliative Care Needs of Individuals with Advanced Rare Diseases and Their Family Caregivers (R01)" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.361, 93.393, 93.395, 93.399.
- This funding opportunity was created on 2016-10-18.
- Applicants must submit their applications by 2018-01-24. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal governments (Federally recognized), Public housing authorities/Indian housing authorities, Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501 (c) (3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501 (c) (3) status with the IRS, other than institutions of higher education, Private institutions of higher education, For-profit organizations other than small businesses, Small businesses, Others.
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Frequently Asked Questions (FAQs)
What is the name of this grant opportunity?
The opportunity is titled "Palliative Care Needs of Individuals with Advanced Rare Diseases and Their Family Caregivers (R01)."
What is the Funding Opportunity Number (FON)?
The Funding Opportunity Number is PA-17-018.
Which agency is offering this opportunity?
This is a National Institutes of Health (NIH) discretionary research grant opportunity.
What type of grant mechanism does this funding use?
The announcement uses the NIH R01 mechanism, which generally supports investigator-initiated, hypothesis-driven research projects intended to make a substantial contribution to the evidence base.
What is the main purpose of this FOA?
The central aim is to build stronger, more practical evidence for palliative care in the context of advanced rare diseases (including rare cancers), with a focus on real-world needs of seriously ill patients and their family members and other unpaid caregivers.
What kinds of needs is the FOA trying to address?
The FOA emphasizes palliative care needs in advanced rare diseases, including needs related to physical well-being (for example symptom control, comfort, functional status, and other clinical outcomes) and psychosocial well-being (for example stress, anxiety, depression, coping, communication, social support, and caregiver burden), with an overarching focus on quality of life for both patients and caregivers.
Does this opportunity include rare cancers?
Yes. The opportunity explicitly includes advanced rare diseases, including rare cancers.
Who are the intended beneficiaries of the research?
The FOA is focused on improving quality of life and related outcomes for (1) individuals living with advanced rare diseases and (2) their family members and other unpaid caregivers who provide day-to-day support.
Is caregiver impact part of the focus, or only patient outcomes?
Caregiver outcomes are a clear focus. The FOA highlights the needs of family caregivers and unpaid caregivers and emphasizes psychosocial factors like caregiver burden, stress, coping, and social support, alongside patient outcomes.
What kinds of research activities does the FOA encourage?
Based on the description provided, the FOA is oriented toward studies that identify palliative care needs in advanced rare diseases, test interventions or care models that address those needs, and produce rigorous, actionable findings that can inform clinical practice, future research, and potentially policy or health system implementation.
What makes research in rare diseases different under this FOA?
The FOA notes that rare diseases often involve small and dispersed patient populations, complex disease trajectories, limited disease-specific treatment options, and major uncertainty for families. The intent is to encourage research that is sensitive to these realities and produces actionable knowledge for improving care and support.
What outcomes does the FOA emphasize for physical well-being?
Examples listed include symptom control, comfort, functional status, and other clinical outcomes.
What outcomes does the FOA emphasize for psychosocial well-being?
Examples listed include stress, anxiety, depression, coping, communication, social support, and caregiver burden.
Is quality of life a central focus?
Yes. The FOA has an overarching focus on quality of life for patients and caregivers.
Who is eligible to apply?
Eligibility is broad and includes many public, private, nonprofit, and governmental organizations, as well as for-profit organizations (other than small businesses) and small businesses. The FOA also lists a range of additional eligible applicant types, including certain minority-serving institutions, faith-based or community-based organizations, eligible federal agencies, regional organizations, U.S. territories or possessions, and non-domestic (non-U.S.) entities (foreign organizations).
Are state and local governments eligible?
Yes. Eligible entities include state, county, city, township, and special district governments, as well as independent school districts.
Are universities and colleges eligible?
Yes. Eligible entities include public and state-controlled institutions of higher education and private institutions of higher education.
Are tribal governments and tribal organizations eligible?
Yes. The FOA includes federally recognized Native American tribal governments and also includes tribal organizations that are not federally recognized tribal governments.
Are nonprofits eligible?
Yes. The FOA includes nonprofits with or without 501(c)(3) status (with the note that institutions of higher education are covered under the higher education categories).
Are for-profit organizations eligible?
Yes. The FOA includes for-profit organizations other than small businesses, and it also lists small businesses as eligible.
Are faith-based or community-based organizations eligible?
Yes. The FOA explicitly notes faith-based or community-based organizations among additional eligible applicant types.
Are minority-serving institutions specifically mentioned as eligible?
Yes. The FOA explicitly notes Alaska Native and Native Hawaiian Serving Institutions, Asian American Native American Pacific Islander Serving Institutions (AANAPISISs), Hispanic-serving Institutions, Historically Black Colleges and Universities (HBCUs), and Tribally Controlled Colleges and Universities (TCCUs).
Can non-U.S. (foreign) organizations apply?
Yes. The FOA explicitly includes non-domestic (non-U.S.) entities (foreign organizations) as eligible applicant types.
Are U.S. territories or possessions included in eligibility?
Yes. The FOA explicitly notes U.S. territories or possessions as eligible applicant types.
What activity categories is this opportunity associated with?
The opportunity is categorized under Education and Health activities.
What CFDA numbers are associated with this FOA?
The CFDA numbers listed are 93.361, 93.393, 93.395, and 93.399.
When was this posting created?
The posting indicates it was created on 2016-10-18.
What is the closing date shown in the provided information?
The excerpt lists an original closing date of 2018-01-24.
Does the provided information specify an award ceiling?
No. The excerpt notes that some fields such as award ceiling are not specified in the provided information.
Does the provided information specify the expected number of awards?
No. The excerpt notes that expected awards are not specified in the provided information.
Where would an applicant typically look for budget expectations or project period norms?
The excerpt indicates that applicants would typically need to refer to the full NIH announcement and related institute/center guidance for budget expectations, project period norms, and any institute-specific constraints.
What is the overall intent of NIH in releasing this FOA?
Overall, the FOA is described as an NIH effort to push palliative care research further into the rare disease space, where evidence gaps are common, and where patients and families can face high symptom burden, complex decision-making, and significant emotional and practical strain.
What does the emphasis on patient and caregiver outcomes imply for competitive projects?
Based on the description provided, competitive projects would likely need to address the caregiving context in addition to the patient experience and generate findings that support measurable improvements in quality of life for both patients and caregivers facing advanced rare illnesses.
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Applicants also applied for:
Applicants who have applied for this opportunity (PA 17 018) also looked into and applied for these:
| Funding Opportunity |
|---|
| Palliative Care Needs of Individuals with Rare Advanced Diseases and Their Family Caregivers (R21) Apply for PA 17 017 Funding Number: PA 17 017 Agency: National Institutes of Health Category: Education, Health Funding Amount: $200,000 |
| Use of Technology to Enhance Patient Outcomes and Prevent Illness (R01) Apply for PA 17 010 Funding Number: PA 17 010 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| Nicotinic Immune Modulation in the Presence of HIV-1 Infection (R01) Apply for RFA DA 17 020 Funding Number: RFA DA 17 020 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| Improving Quality of Care and Quality of Life for Persons with Alzheimers Disease and Related Dementias at the End of Life (R01) Apply for PAS 17 027 Funding Number: PAS 17 027 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| Improving Quality of Care and Quality of Life for Persons with Alzheimers Disease and Related Dementias at the End of Life (R03) Apply for PAS 17 026 Funding Number: PAS 17 026 Agency: National Institutes of Health Category: Education, Health Funding Amount: $50,000 |
| NCI Research Specialist (Core-based Scientist) Award (R50) Apply for PAR 17 050 Funding Number: PAR 17 050 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| NCI Research Specialist (laboratory-based Scientist) Award (R50) Apply for PAR 17 049 Funding Number: PAR 17 049 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| Phylodynamic Tracking of HIV Transmission (R01) Apply for PAR 17 048 Funding Number: PAR 17 048 Agency: National Institutes of Health Category: Education, Health Funding Amount: $499,999 |
| Innovative Molecular and Cellular Analysis Technologies for Basic and Clinical Cancer Research (R21) Apply for RFA CA 17 010 Funding Number: RFA CA 17 010 Agency: National Institutes of Health Category: Education, Health Funding Amount: $200,000 |
| National Cancer Institute Youth Enjoy Science Research Education Program (R25) Apply for PAR 17 059 Funding Number: PAR 17 059 Agency: National Institutes of Health Category: Education, Health Funding Amount: $500,000 |
| Promoting Caregiver Health Using Self-Management (R01) Apply for PA 17 062 Funding Number: PA 17 062 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| Limited Competition: Cancer Immunotherapy Trials Network (CITN)(UM1) Apply for RFA CA 16 501 Funding Number: RFA CA 16 501 Agency: National Institutes of Health Category: Education, Health Funding Amount: $3,000,000 |
| Oral Anticancer Agents: Utilization, Adherence, and Health Care Delivery (R21) Apply for PA 17 061 Funding Number: PA 17 061 Agency: National Institutes of Health Category: Education, Health Funding Amount: $200,000 |
| Oral Anticancer Agents: Utilization, Adherence, and Health Care Delivery (R01) Apply for PA 17 060 Funding Number: PA 17 060 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| NCI Transition Career Development Award to Promote Diversity (K22) Apply for PAR 17 069 Funding Number: PAR 17 069 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| Optimizing the HIV Care Continuum for Substance Abusing Populations at High-Risk and/or Living with HIV (R01) Apply for RFA DA 17 024 Funding Number: RFA DA 17 024 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| The NCI Predoctoral to Postdoctoral Fellow Transition Award (F99/K00) Apply for RFA CA 17 014 Funding Number: RFA CA 17 014 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| Revision Awards to Institutional Training Programs to Advance Research on Alzheimers Disease and Alzheimer's Disease Related Dementias (T32) Apply for PAR 17 072 Funding Number: PAR 17 072 Agency: National Institutes of Health Category: Education, Health Funding Amount: $300,000 |
| Potential Effects of Metformin on Aging and Age-Related Conditions: Small-Scale Clinical Studies and Secondary Analysis of Controlled Clinical Studies (R01) Apply for PA 17 073 Funding Number: PA 17 073 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
| NIH-DoD-VA Pain Management Collaboratory - Coordinating Center (U24) Apply for RFA AT 17 002 Funding Number: RFA AT 17 002 Agency: National Institutes of Health Category: Education, Health Funding Amount: Case Dependent |
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